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PRODID:-//Clinical & Translational Sciences//NONSGML Events//EN
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X-ORIGINAL-URL:https://icts.wustl.edu/events/
X-WR-CALDESC:Clinical & Translational Sciences - Events
BEGIN:VEVENT
UID:20231004T2020Z-1696450816.0721-EO-45464-1@172.23.128.18
STATUS:CONFIRMED
DTSTAMP:20260624T081049Z
CREATED:20231004T200831Z
LAST-MODIFIED:20231005T174718Z
DTSTART;TZID=America/Chicago:20231019T173000
DTEND;TZID=America/Chicago:20231019T194500
SUMMARY: Rare Disease Forum
DESCRIPTION: A unique event bringing together leading researchers\, patient
  advocates\, and care experts. Explore the latest breakthroughs in gene the
 rapies and gain insights into effective transitional care strategies. This 
 event promises to ignite discussions\, foster collaborations\, and inspire 
 a shared commitment to enhancing the lives of those affected by rare diseas
 e. Location: Virtually or at WashU […]
X-ALT-DESC;FMTTYPE=text/html: <p><img class="alignright wp-image-45465 size
 -medium" src="https://icts.wustl.edu/app/uploads/2023/10/2023.10.19-IPH-Rar
 e-Disease-Forum-graphic-273x300.png" alt="2023 RARE DISEASE FORUM graphic" 
 width="273" height="300" /></p><p class="lead">A unique event bringing toge
 ther leading researchers\, patient advocates\, and care experts.</p><p>Expl
 ore the latest breakthroughs in gene therapies and gain insights into effec
 tive transitional care strategies. This event promises to ignite discussion
 s\, foster collaborations\, and inspire a shared commitment to enhancing th
 e lives of those affected by rare disease.</p><p><strong>Location:</strong>
  Virtually or at WashU Institute of Public Health Building Taylor Avenue Bu
 ilding (TAB)</p><ul><li><strong>Panel 1: Emerging Gene Therapies for Rare D
 isease</strong><br />Join experts as they discuss groundbreaking treatments
 \, from CRISPR to personalized gene therapies\, and their profound impact o
 n rare disease management and the transformative impact these advancements 
 are having on patients' lives.</li><li><strong>Panel 2: Bridging Care: From
  Pediatrics to Adulthood</strong><br />Patient advocates and experts discus
 s vital strategies for ensuring consistent care\, emotional well-being\, an
 d practical solutions to empower patients to thrive as they navigate this p
 ivotal life juncture.</li></ul><div class="wp-block-button aligncenter"><a 
 class="wp-block-button__link wp-element-button" href="https://www.eventbrit
 e.com/e/2023-rare-disease-forum-tickets-646589716247?aff=oddtdtcreator">Reg
 ister Now</a></div>
LOCATION:Taylor Avenue Building (TAB)
GEO:38.634807;-90.258941
ORGANIZER;CN="McKinzie":MAILTO:tolliver.m@wustl.edu
URL;VALUE=URI:https://icts.wustl.edu/events/event/rare-disease-forum/
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TZID:America/Chicago
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DTSTART:20230312T080000
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