Virginia C. Lanzotti, MSN, PMHNP-BC, BSN

Washington University in St. Louis (WU)

Virginia is a nurse practitioner whose clinical expertise is in child and adolescent psychiatry. She works in collaboration with St. Louis Children’s Hospital providing outpatient psychiatry services to children who were recently hospitalized for an acute behavioral or neurodevelopmental concern. Virginia is also the program coordinator for the Brain Gene Registry, an interinstitutional collaboration between 13 academic medical centers nationwide. The Brain Gene Registry is an electronic data-repository that pairs rich neurobehavioral phenotype data obtained from electronic health records and standardized assessments with variant level genomic data. The mission of the BGR is to broaden our understanding of disease-gene relationships for rare neurogenetic conditions and make this data accessible to members of the scientific community. The registry contains data on more than 650 participants with genetic variants, ranging from newly discovered to well-described syndromes. Data is available to investigators who complete a request through the BGR website, https://braingeneregistry.wustl.edu.